The World Can't Wait:
R&D Category Definitions for the Eight Diseases Studied
Families USA classified research spending on the eight diseases included in "The World Can’t Wait" into research categories depending on where in the research and development pipeline that spending fell.
To ensure that classification by research category was consistent across agencies, Families USA, working with members of its advisory board and seeking input from scientists at NIH, developed research category definitions for each of the diseases. The definitions outline different research stages and illustrative activities falling in each research stage, for each of the diseases.
Families USA forwarded these definitions to the agencies that we requested data from to guide them in the preparation of that data. For NIH data, which Families USA collected following a process recommended by NIH, Families USA followed these definitions to classify research spending. Click on the links below to read more about the research category definitions prepared by Families USA that the agencies and Families USA used to classify spending:
R&D Category Definitions, All Diseases
African Trypanosomiasis (African Sleeping Sickness)
American Trypanosomiasis (Chagas Disease)
Families USA would like to thank the members of its Global Health Initiative Advisory Board who gave us a great deal of time and feedback, helping us to develop these disease-specific classifications. Organizations represented on our Board, and the individual(s) representing each are:
Aeras Foundation, Peg Willingham and her predecessor, Bruce Kirshenbaum; AIDS Vaccine Advocacy Coalition (AVAC), Mitchell Warren; Alliance for Microbicide Development, Polly Harrison; Drugs for Neglected Diseases Initiative, Jana Armstrong and Els Torreele; Family Health International, Kate MacQueen; Global Health Council, Maurice Middleberg and Nicole Bates; Medicines for Malaria Venture, Anna Wang; and, RESULTS, John Fawcett and his predecessor, Sue Perez.