Reported Upton-Long Amendment Does Virtually Nothing to Address Coverage for People With Pre-Existing Conditions - Families Usa Skip to Main Content

Reported Upton-Long Amendment Does Virtually Nothing to Address Coverage for People With Pre-Existing Conditions

Families USA’s analysis finds the Upton-Long proposal to increase funds for high-risk pools would cover only a fraction of America’s health care consumers who have pre-existing conditions: As many as 15 million people with pre-existing conditions would be left behind.


Today, House Republicans are weighing a new amendment to the American Health Care Act (AHCA) in their latest attempt to secure the needed votes to bring the bill to the House floor.

Reports on the negotiations suggest that the amendment, drafted by two key Republican holdouts—Reps. Frank Upton and Billy Long—would add a paltry $8 billion over five years to the funds available in AHCA to offset premium increases and to make up for the bill’s elimination of financial assistance with cost-sharing.

The additional funding is being included in the name of providing financial support for people with pre-existing conditions who will see drastically higher premiums under this plan.

The Upton-Long amendment is not even a fig leaf: It is a laughably inadequate attempt to ameliorate damage done by the provisions of the AHCA that would drastically undermine the ACA’s guarantee of affordable comprehensive coverage for people with pre-existing conditions.

An amendment introduced last week by Rep. MacArthur further exacerbates these problems by allowing states to waive key consumer protections for people with pre-existing conditions, eliminating or weakening the law’s essential health benefits requirements and allowing insurers to charge people with pre-existing conditions drastically higher premiums for coverage.

House Republicans have claimed that the $130 billion in funds (or $13 billion per year for 10 years) included in the most recent published version of the bill would be sufficient to protect these individuals from higher premiums—a claim that has been roundly disputed by experts. This fund includes $100 billion for a Patient and State Stability Fund, $15 billion for a federal “invisible risk-sharing” program, and $15 billion earmarked for specific health needs/conditions. The Upton-Long amendment adds only $8 billion to this fund, bringing the total funds available per year to $14.6 billion—an amount not nearly sufficient to ameliorate the damage this bill will cause in access to affordable coverage for the millions of individuals with pre-existing conditions.

The purpose of the Fund is amorphous. Importantly, the funds available in the bill could be used by states for multiple different purposes and states are not obligated to put any of this funding toward offsetting increases in premiums for people with pre-existing conditions. Republicans continue to claim that an unspecified portion is intended to protect other populations who will be hurt by cuts to financial assistance already in the bill, including older adults and lower-income people losing help with cost-sharing.

Families USA analysis finds amendment to increase high-risk pool funds leaves behind as many as 15 million people with pre-existing conditions

According to a Families USA analysis, even if all funds were directed to high-risk pools, the funds allocated under the Upton-Long amendment could cover only 76,000 individualswith pre-existing conditions per year. If the entirety of the state fund (as increased by the amendment) was used to cover people with high-cost pre-existing conditions (in the top 5 percent of costs for individuals purchasing coverage), it would only go far enough as to cover 693,000 individuals. This would still leave at least 6.4 million, and as many as 15 million, people with pre-existing conditions who get coverage through the individual and small group markets without any additional financial support to help protect them from increases in premiums and benefit cuts.

Table 1: People in individual and small group coverage with pre-existing conditions who would be left behind under AHCA
Total Number of People with Pre-Existing Conditions Number of People with Pre-Existing Conditions Left Behind Percent of Population with Pre-Existing Conditions Left Behind
Lower Bound Estimate of People with Pre-Existing Conditions 7,130,000 6,440,000 90%
Higher Bound Estimate of People with Pre-Existing Conditions 15,810,000 15,120,000 96%
Table 2: People with pre-existing conditions covered with AHCA high-risk pool funds
Number of People Covered
People Covered with Pre-Existing Conditions with AHCA Before Upton/Long Changes 617,000
Additional People with Pre-Existing Conditions Covered with Upton/Long Proposal 76,000
Total Number of People with Pre-Existing Conditions Covered under AHCA 693,000

As our analysis makes clear, this new amendment would not provide nearly enough in funding to ensure that individuals with pre-existing conditions would have access to affordable, comprehensive coverage under the AHCA. The small additional funding provided under the Upton/Long amendment still leaves millions with no affordable coverage options. Furthermore, these changes do nothing to reduce the harm caused by the other provisions of the AHCA that would:

  • Raise premiums for millions of people in America, especially older and sicker populations
  • Increase the number of people without insurance by 24 million
  • Effectively eliminate Medicaid expansion and ration future Medicaid care
  • Give $600 billion in tax breaks to the wealthy

Analysis Methodology

Estimates of the number of people in the individual and small group market with pre-existing conditions were determined based on estimates that a total of 31 million people are enrolled in individual and small group market coverage and between 23 percent and 51 percent of non-elderly individuals have a pre-existing condition, according to 2017 ASPE analysis.

Analysis of the number of people with high-cost pre-existing conditions who would be covered by high-risk pools through AHCA funding is based on a Center on American Progress (CAP) analysis that estimated that 1.5 million people in the individual and small group markets have severe enough health conditions that they previously would have been covered through a high-risk pool and that providing this population high-risk pool coverage would require $21,080 in federal funding per person per year.