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Valuable Voices,
     Powerful Stories

Valuable Voices,
     Powerful Stories

Improving Consumer Protection, Access, and the Overall Experience

At Families USA, we share a conviction that the people — a patient, consumer, or advocate — should be at the forefront of our mission to achieve improved health and health care for all. Our goal is to bring storytellers like you into the conversation, so policymakers better understand who we are advocating for, and why these changes are so important. You are the voice, the face, and the push behind the policy, and your story matters.

Securing and Expanding Comprehensive Coverage

People in every state deserve access to affordable, equitable, and comprehensive health coverage that meets their needs. But, too many people in America are falling through the cracks in our system, leaving them paying too much for too little care, or not able to afford any insurance at all. Choose a story below to learn more about coverage experiences.
Tamira Moon: A Public Health Professional Learns What It's Like to Fall Through the Cracks

After a federal workforce reduction cost her a career spent advancing health equity, Tamira Moon lost her job and her insurance for the first time in her adult life. Now managing a chronic autoimmune condition on a Georgia Access marketplace plan she can barely afford, she has found that even the top coverage tier leaves her unable to pay for basic diagnostics like X-rays.

Read Tamira’s story
Annemarie Morse: Working Too Much to Qualify, Too Little to Get By

Annemarie Morse has been on and off MaineCare, Maine's Medicaid program, since the end of 2019, when they first went to a crisis unit and were, in their words, "faced with my mental health full on." They've had health insurance through their employer a few times in between, but at one point, they had to quit a job because it didn't offer coverage, and their income was too high to qualify for MaineCare. This coverage gap — earning too much to qualify for MaineCare but not enough to comfortably afford private insurance or a stable housing — is one many Medicaid recipients know well.

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Trevor Sherman: Trapped Between His Job and His Health

A scuba diving accident led to a hospital stay that also revealed a serious autoimmune disease — one that now requires $16,000 infusions four times a year. Trevor Sherman has comprehensive employer-sponsored coverage that keeps his treatment affordable — but staying insured means he has to keep working, even when stress and exhaustion make his condition worse.

Read Trevor’s story
More Securing and Expanding Comprehensive Coverage Stories

Supporting Health and Economic Security and Justice

Everyone in America should have the opportunity to live their healthiest life no matter who we are, where we are from, or where we live. Our current health care system does not make improved health for all its primary focus, particularly for Black and brown communities, immigrants, LGBTQ+ people, and other historically oppressed groups. Choose a story below to learn more about health equity experiences.
Tomeka James: A Mother’s Story of Loss, Survival, and Advocacy for Maternal Care

In 2017, Tomeka James Isaac was pregnant with her first and only son, Jace. At 40 years old, she was told early on that she would be at high risk for pre-eclampsia, yet despite this ominous warning, Tomeka’s pregnancy was progressing smoothly. Until, at her 35-week appointment, complications began.

Read Tomeka’s story
Kea Dupree: Honoring the Whole Person: Kea’s Birth Experience

Kea had a plan. Pregnant with her first child, she knew she wanted a natural birth, and she wanted her birth experience to be an experience that was unique to her. However, she felt dismissed by doctors when she made requests, and ignored at appointments. Kea switched to a birth center, and everything changed for the better.

Read Kea’s story
Tamara Hamilton: Challenges of COVID-19 Testing Criteria

Tamara's 18 month old grandson fell ill with a slight cough and signs mirroring COVID-19, but was not tested by his pediatrician. After his oxygen levels dropped, he was taken to the ER but was still not tested for COVID-19 due to not meeting testing criteria.

Read Tamara’s story

Advancing Affordability and High Value Care

As a nation, we spend over $4 trillion each year on health care, but our health and health care are not improving. More than half of Americans are worried about affording health care and a third are forced to choose between paying the rent check or the grocery bill, and their medical bills. We deserve better, higher-quality health care. Choose a story below to learn more health care value experiences.
Tyler Denea: Auditing Her Own Hospital Bill While Caring for a Newborn

After giving birth, Tyler Denea requested an itemized hospital bill and found charges for care that never happened — including 80 doses of a medication and a procedure she says she didn't receive. Instead of focusing on a difficult postpartum recovery, she spent weeks disputing charges and navigating automated phone lines.

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Kylan D.: Stuck With a Bill Instead of a Baby

After a miscarriage left her hemorrhaging and in need of emergency care, Kylan D. was hit with nearly $13,000 in medical bills after her insurer wrongly denied coverage. Weeks of daily phone calls and persistence cut the bill down to roughly $2,300 — but she says no grieving family should have to fight that hard just to get the coverage they're owed.

Read Kylan’s story
Heather Pierce: When Every Medical Decision Comes with a Price Tag Attached

When Heather Pierce's husband shattered his leg in a fall from a roof, her first thought wasn't just the hospital — it was whether they could afford the ambulance. A former Medicaid and health insurance professional, Heather has spent her career helping others navigate coverage, yet her own family has faced tens of thousands of dollars in medical debt, forcing her to delay surgeries, negotiate cash prices, and weigh her children's safety against what they could afford.

Read Heather’s story
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