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Valuable Voices,
     Powerful Stories

Valuable Voices,
     Powerful Stories

People’s Experience

At Families USA, we share a conviction that the people — a patient, consumer, or advocate — should be at the forefront of our mission to achieve improved health and health care for all.

Our goal is to bring storytellers like you into the conversation, so policymakers better understand who we are advocating for, and why these changes are so important.

You are the voice, the face, and the push behind the policy, and your story matters.

Health Care Coverage

People in every state deserve access to affordable, equitable, and comprehensive health coverage that meets their needs. But, too many people in America are falling through the cracks in our system, leaving them paying too much for too little care, or not able to afford any insurance at all. Choose a story below to learn more about coverage experiences.
Siiri Cressey: An Invisible Disability, a Disappearing Safety Net

Siiri Cressey lives in Lewiston, Maine, where she has spent her entire life. “I’ve been a Mainer my whole life, born and raised here,” she said. Currently living with a long-term disability, Siiri receives health coverage through MaineCare, which includes both Medicaid and Medicare benefits.

Read Siiri’s story
Garret Frey: A Life on the Line in Iowa’s Medicaid System

Garret Frey lives in Cedar Rapids, Iowa, a city rooted in Midwestern values where community and care for one another still matter. In 1987, Garret was in a motorcycle accident leaving him with a C4-C5 spinal cord injury, quadriplegic and ventilator dependent. As a person living with a physical disability, Garret knows firsthand the difference Medicaid makes, not just in his life, but in the lives of millions. 

Read Garret’s story
Raychel Ward: Medicaid Is a Lifeline for Rural Maine Families

Raychel Ward lives in Livermore Falls, Maine, where she cares for her three medically complex children. If Congress dismantled the Affordable Care Act and gutted Medicaid—known in Maine as MaineCare and CubCare—Raychel said it would be nearly impossible for her family to function.

Read Raychel’s story
More Health Care Coverage Stories

Health Equity

Everyone in America should have the opportunity to live their healthiest life no matter who we are, where we are from, or where we live. Our current health care system does not make improved health for all its primary focus, particularly for Black and brown communities, immigrants, LGBTQ+ people, and other historically oppressed groups. Choose a story below to learn more about health equity experiences.
Tomeka James: A Mother’s Story of Loss, Survival, and Advocacy for Maternal Care

In 2017, Tomeka James Isaac was pregnant with her first and only son, Jace. At 40 years old, she was told early on that she would be at high risk for pre-eclampsia, yet despite this ominous warning, Tomeka’s pregnancy was progressing smoothly. Until, at her 35-week appointment, complications began.

Read Tomeka’s story
Kea Dupree: Honoring the Whole Person: Kea’s Birth Experience

Kea had a plan. Pregnant with her first child, she knew she wanted a natural birth, and she wanted her birth experience to be an experience that was unique to her. However, she felt dismissed by doctors when she made requests, and ignored at appointments. Kea switched to a birth center, and everything changed for the better.

Read Kea’s story
Tamara Hamilton: Challenges of COVID-19 Testing Criteria

Tamara's 18 month old grandson fell ill with a slight cough and signs mirroring COVID-19, but was not tested by his pediatrician. After his oxygen levels dropped, he was taken to the ER but was still not tested for COVID-19 due to not meeting testing criteria.

Read Tamara’s story

Health Care Value

As a nation, we spend over $4 trillion each year on health care, but our health and health care are not improving. More than half of Americans are worried about affording health care and a third are forced to choose between paying the rent check or the grocery bill, and their medical bills. We deserve better, higher-quality health care. Choose a story below to learn more health care value experiences.
Stefanie Ebnal: A Nurse's Fight for a Healthier Health Care System

Stefanie Ebnal, one of the thousands of nurses and health care workers on the front lines of the Providence hospital nurses strike in Portland, OR did not start her career as a nurse. Instead, she began in pharmaceutical research, following a scientific path—but never truly feeling connected to the work.

Read Stefanie’s story
Dr. Jennifer Lincoln: A Voice for Patients and Providers in a Changing System

Dr. Lincoln has built her career on empathy, trust, and teamwork. Now, she's using those same values to challenge a system increasingly shaped by private equity and corporate interests.

Read Jennifer’s story
Bob Parant: A Lifetime of Advocacy and Resilience

Bob Parant has been living with type 1 diabetes for over 52 years. Diagnosed at 19 during what he calls the "dark ages" of diabetes care, Bob's journey has been one of perseverance, adaptation, and advocacy. At the time, diabetes management was rudimentary—urine testing provided little insight into actual blood sugar levels, and treatment relied on a strict diet and a single daily insulin injection.

Read Bob’s story