I know some of the world thinks that it’s really easy to qualify for these programs, but it’s not. It’s so hard. You have to jump through so many hoops.
When Heather Pierce’s husband fell 12 feet from a roof onto concrete, she knew he needed medical attention immediately. But before she thought about the hospital, she thought about whether they could afford an ambulance.
Her husband, a painting contractor and small business owner, had shattered his left leg in the fall. As Heather drove him to the hospital, every bump in the road caused him more pain. “I talked to his business partner, and I was like, ‘It’s going to be $10,000 for an ambulance. I can’t afford to take that on,” Heather said.
Heather understands the health care system better than most. She began working in Medicaid in 2002, in marketing and communications, promoting covered services and benefits to plan members of Medicaid plans in more than 10 states. She later spent years in health insurance, helping people navigate benefits and programs like Medicaid and Medicare. Yet even with that expertise, she found herself facing the same challenges as many families she helped. “I can’t even imagine how other people feel because this is so confusing. I have the answers or know where to find them, and I still find it challenging,” she said.
After her husband’s accident, Heather and her family faced thousands of dollars in medical expenses. His hospital stay lasted a week, and nearly a year later, he was still recovering and preparing for another surgery. The family had already reached their insurance plan’s $15,000 out-of-pocket maximum, and Heather worried about how they would afford future care, including the additional costs of his upcoming procedure. “We’ve got almost $17,000 in medical bills sitting here in my office right now that I have not been able to start paying on yet,” Heather said.
The injury also affected his business. As a self-employed business owner, Heather’s husband had no paid leave to fall back on while he recovered, and his absence caused profits to decline while expenses kept growing.
As another surgery approached, Heather worried about facing a second $15,000 out-of-pocket maximum, one that could push their total medical debt above $30,000. She began considering whether her husband might qualify for disability benefits and Medicaid, though she emphasized that accessing these programs is far from simple. “I know some of the world thinks that it’s really easy to qualify for these programs, but it’s not,” she said. “It’s so hard. You have to jump through so many hoops.”
For Heather, this kind of financial strain was nothing new. “This has been like literally my entire life, essentially since I started my family,” she said.
Before the Affordable Care Act was law, Heather and her husband purchased private insurance while working independently. Heather was surprised to learn that her plan did not include maternity coverage; she was told pregnancy was considered a pre-existing condition. Unable to afford add on maternal health coverage, she negotiated cash prices with her doctors and chose a hospital based on maternal outcomes, knowing the more affordable option did not offer the same level of care she wanted. When complications required an emergency C-section, the costs quickly escalated.
After giving birth, Heather received a bill far higher than she anticipated. “I think all in all, I owed about $23,000,” she said. Her appeal was denied, and the debt shaped major decisions in her life, including when she felt financially stable enough to grow her family.
Paying off that debt did not end Heather’s struggles with health care costs. Even after gaining employer-sponsored insurance and having her second son, she continued making decisions based on what she could afford. When doctors found a benign thyroid tumor during her second pregnancy, she postponed surgery for years. “I had to wait until it got so big that I could afford to get it out,” she said.
That pattern has never really stopped. While caring for her husband, her mother, and her two children, Heather scheduled her own surgeries, for carpal tunnel and for removal of a mass on her back, before the end of the year, once the family had already reached its out-of-pocket maximum. And when her youngest son started playing tackle football, she found herself telling him something no parent wants to say: “Please don’t get hurt. I literally cannot afford this.”
Heather’s experiences also reshaped her career. After years working in health insurance, she left the industry when she felt its impact on families conflicted with her own values. “I can’t be the reason that somebody is bankrupt,” she said. “I’ve been on the other end of this. This is awful.”
Now, Heather shares her story through her podcast and advocacy work, hoping to help others understand a system she knows from every angle. “My intent was to educate, inform, and build empathy,” she said. “I want people to understand how complicated these systems are.”
For Heather, her husband’s fall from the roof was not an isolated crisis. It was one more entry in a lifetime of moments when getting care has meant weighing it against what her family could afford.
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