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Valuable Voices,
     Powerful Stories

Valuable Voices,
     Powerful Stories

Improving Consumer Protection, Access, and the Overall Experience

At Families USA, we share a conviction that the people — a patient, consumer, or advocate — should be at the forefront of our mission to achieve improved health and health care for all. Our goal is to bring storytellers like you into the conversation, so policymakers better understand who we are advocating for, and why these changes are so important. You are the voice, the face, and the push behind the policy, and your story matters.

Securing and Expanding Comprehensive Coverage

People in every state deserve access to affordable, equitable, and comprehensive health coverage that meets their needs. But, too many people in America are falling through the cracks in our system, leaving them paying too much for too little care, or not able to afford any insurance at all. Choose a story below to learn more about coverage experiences.
Anne Marie Schneider: How Rising Premiums Push Families Out of Care

Anne Marie Schneider lives in Durham, North Carolina, and has spent more than three decades working across nearly every corner of the health care system. After losing her job with only days to act, Anne Marie and her husband turned to the ACA Marketplace. Given their circumstances, the family qualified for enhanced ACA tax credits, but without subsidies, the cost was impossible.

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Heidi Pomerleau: The Constant Fear of Losing Medicaid and Medicare Coverage

It took years for Heidi Pomerleau to get the health coverage they need to manage their permanent disability. Now covered by Medicaid and Medicare, Heidi lives in constant fear that they will lose access to care if the programs are cut. Now Heidi fights to help other people get insurance coverage through Medicaid or the Affordable Care Act (ACA).

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Renee Arnold: Priced Out of Coverage While Caring for Others

Renee Arnold has spent her life caring for people with disabilities, yet she cannot afford health insurance for her own husband. As premiums skyrocket, she faces impossible choices between housing, health care, and financial survival.

Read Renee’s story
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Supporting Health and Economic Security and Justice

Everyone in America should have the opportunity to live their healthiest life no matter who we are, where we are from, or where we live. Our current health care system does not make improved health for all its primary focus, particularly for Black and brown communities, immigrants, LGBTQ+ people, and other historically oppressed groups. Choose a story below to learn more about health equity experiences.
Tomeka James: A Mother’s Story of Loss, Survival, and Advocacy for Maternal Care

In 2017, Tomeka James Isaac was pregnant with her first and only son, Jace. At 40 years old, she was told early on that she would be at high risk for pre-eclampsia, yet despite this ominous warning, Tomeka’s pregnancy was progressing smoothly. Until, at her 35-week appointment, complications began.

Read Tomeka’s story
Kea Dupree: Honoring the Whole Person: Kea’s Birth Experience

Kea had a plan. Pregnant with her first child, she knew she wanted a natural birth, and she wanted her birth experience to be an experience that was unique to her. However, she felt dismissed by doctors when she made requests, and ignored at appointments. Kea switched to a birth center, and everything changed for the better.

Read Kea’s story
Tamara Hamilton: Challenges of COVID-19 Testing Criteria

Tamara's 18 month old grandson fell ill with a slight cough and signs mirroring COVID-19, but was not tested by his pediatrician. After his oxygen levels dropped, he was taken to the ER but was still not tested for COVID-19 due to not meeting testing criteria.

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Advancing Affordability and High Value Care

As a nation, we spend over $4 trillion each year on health care, but our health and health care are not improving. More than half of Americans are worried about affording health care and a third are forced to choose between paying the rent check or the grocery bill, and their medical bills. We deserve better, higher-quality health care. Choose a story below to learn more health care value experiences.
Wayne Riley: Rising Costs Lead to Impossible Choices

For two years, Wayne, a 56-year-old living in Colorado with his wife, relied on marketplace insurance to protect their health, and their finances. Their monthly premium of $690 was high but manageable. That all changed when Wayne, a self-employed commercial cleaner, contacted his insurance agent to ask about the upcoming year.

Read Wayne’s story
Lacy Marshall: Confronting the Hidden Costs of America’s Health Care

When Lacy Marshall’s daughter suffered a long seizure and was diagnosed with epilepsy, the family was quickly overwhelmed by insurance changes, denied imaging, and unexpected bills. Their experience pushed Lacy to speak out about how confusing and costly the system can be and help others navigate it.

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Danielle: A Mother Caught Off Guard by Rising Facility Fees

Danielle, a mother in West Virginia, has always done everything she can to keep her six-year-old son healthy. Born at 29 weeks and diagnosed with multiple disabilities, her son has relied on consistent, trusted care from the same pediatrician since leaving the NICU. For years, their visits were simple: a small copay, the care he needed, and no unexpected bills. That changed in 2024, when the pediatrician’s long-standing independent practice was taken over by WVUMedicine.

Read Danielle,’s story
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