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Valuable Voices,
     Powerful Stories

Valuable Voices,
     Powerful Stories

Improving Consumer Protection, Access, and the Overall Experience

At Families USA, we share a conviction that the people — a patient, consumer, or advocate — should be at the forefront of our mission to achieve improved health and health care for all. Our goal is to bring storytellers like you into the conversation, so policymakers better understand who we are advocating for, and why these changes are so important. You are the voice, the face, and the push behind the policy, and your story matters.

Securing and Expanding Comprehensive Coverage

People in every state deserve access to affordable, equitable, and comprehensive health coverage that meets their needs. But, too many people in America are falling through the cracks in our system, leaving them paying too much for too little care, or not able to afford any insurance at all. Choose a story below to learn more about coverage experiences.
Susan Alleman: A Cancer Survivor Fighting to Stay Covered

Susan Alleman is a 57-year-old resident of Lincoln, Nebraska, who spent most of her adult life uninsured and hoping for the best. She had seen the health care system up close — navigating it alongside her partner during his long illness before he died of cancer in 2021, and then again with her father in 2023. By 2024, it was her turn.

Read Susan’s story
Carmilla Collins: The Cost of Waiting for Care

Carmilla Collins is a 51-year-old single mother living in Douglas County, Omaha, Nebraska. She works full time and holds a part-time job to make ends meet, raising her 15-year-old daughter while supporting herself on paychecks that leave little margin for error — and even less for unexpected medical bills. For the better part of a year and a half, she had no health insurance at all.

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Lily Fang: What Happens When Affordable Coverage Disappears

Lily Fang didn't leave her full-time job until she had a safety net: New York's Essential Plan, with no premium and no deductible. Now, federal cuts are eliminating that coverage for 450,000 New Yorkers, and for Lily, the loss is about more than a doctor's visit — it's about whether maintaining self-employment is feasible.

Read Lily’s story
More Securing and Expanding Comprehensive Coverage Stories

Supporting Health and Economic Security and Justice

Everyone in America should have the opportunity to live their healthiest life no matter who we are, where we are from, or where we live. Our current health care system does not make improved health for all its primary focus, particularly for Black and brown communities, immigrants, LGBTQ+ people, and other historically oppressed groups. Choose a story below to learn more about health equity experiences.
Tomeka James: A Mother’s Story of Loss, Survival, and Advocacy for Maternal Care

In 2017, Tomeka James Isaac was pregnant with her first and only son, Jace. At 40 years old, she was told early on that she would be at high risk for pre-eclampsia, yet despite this ominous warning, Tomeka’s pregnancy was progressing smoothly. Until, at her 35-week appointment, complications began.

Read Tomeka’s story
Kea Dupree: Honoring the Whole Person: Kea’s Birth Experience

Kea had a plan. Pregnant with her first child, she knew she wanted a natural birth, and she wanted her birth experience to be an experience that was unique to her. However, she felt dismissed by doctors when she made requests, and ignored at appointments. Kea switched to a birth center, and everything changed for the better.

Read Kea’s story
Tamara Hamilton: Challenges of COVID-19 Testing Criteria

Tamara's 18 month old grandson fell ill with a slight cough and signs mirroring COVID-19, but was not tested by his pediatrician. After his oxygen levels dropped, he was taken to the ER but was still not tested for COVID-19 due to not meeting testing criteria.

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Advancing Affordability and High Value Care

As a nation, we spend over $4 trillion each year on health care, but our health and health care are not improving. More than half of Americans are worried about affording health care and a third are forced to choose between paying the rent check or the grocery bill, and their medical bills. We deserve better, higher-quality health care. Choose a story below to learn more health care value experiences.
Bill McAdams: An ER Nurse Facing the Other Side of the System

Bill McAdams built a 13-year career as an emergency room nurse, caring for people at their most vulnerable. In September 2025, he had an ischemic stroke while on assignment in Indiana — and woke up with a $93,000 hospital bill. Uninsured, he navigated the charity care system with the same determination he brought to his patients — only to be denied, misled, and pushed to a breaking point that ended in a second stroke.

Read Bill’s story
Susan Reabuck: When the Cost of Coverage Became a Matter of Life and Death

A Pennsylvania mother dropped her own health insurance to keep her husband and children covered — a decision that nearly cost her life when an untreated infection progressed to sepsis.

Read Susan’s story
Britney Lynn: When the Drug That Works is Just Out of Reach

Britney Lynn found a medication that worked to manage her diabetes — until her insurance stopped paying for it. Trying to manage her condition without access to the drugs she needs caused her to lose her job and can cost hundreds of dollars a month out-of-pocket, leading Britney to forgo care or use less effective medications with worse side-effects.

Read Britney’s story
More Advancing Affordability and High Value Care Stories