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Valuable Voices,
     Powerful Stories

Valuable Voices,
     Powerful Stories

Improving Consumer Protection, Access, and the Overall Experience

At Families USA, we share a conviction that the people — a patient, consumer, or advocate — should be at the forefront of our mission to achieve improved health and health care for all. Our goal is to bring storytellers like you into the conversation, so policymakers better understand who we are advocating for, and why these changes are so important. You are the voice, the face, and the push behind the policy, and your story matters.

Securing and Expanding Comprehensive Coverage

People in every state deserve access to affordable, equitable, and comprehensive health coverage that meets their needs. But, too many people in America are falling through the cracks in our system, leaving them paying too much for too little care, or not able to afford any insurance at all. Choose a story below to learn more about coverage experiences.
Julia Rion: Living With Chronic Illness and Constant Financial Fear

Julia Rion has managed Crohn's disease since childhood, but even with employer-sponsored insurance, she spent $500 to $1,000 a month out of pocket on care, accumulating $5,000 in medical debt in a single year. After losing her job, Medicaid expansion coverage in New York gave her the stability her previous insurance couldn't, but it didn't erase the fear of what a lifetime of chronic illness could cost her.

Read Julia’s story
Abbey Diamond: When You Can't Afford Coverage, You Just Hope for the Best

Priced out of her husband's employer plan, Abbey Diamond decided to stay uninsured, telling herself, "I'll just hope for the best." Then a piece of food became lodged in her throat, leading to emergency surgery and a $17,000 hospital bill she is still paying off, all while she fears what happens to her family's care once her postpartum Medicaid coverage ends.

Read Abbey’s story
Lee Thompson: Working Hard, Still Falling Through the Gaps

Lee Thompson works full time in Nebraska's food industry, but his employer offers no health benefits, making Medicaid essential to his care. When dental pain became unbearable, he had to fight to get an appointment, and a roughly $700 annual dental cap on his coverage left him paying the difference out of pocket for a root canal that, to this day, remains unfinished with no crown.

Read Lee’s story
More Securing and Expanding Comprehensive Coverage Stories

Supporting Health and Economic Security and Justice

Everyone in America should have the opportunity to live their healthiest life no matter who we are, where we are from, or where we live. Our current health care system does not make improved health for all its primary focus, particularly for Black and brown communities, immigrants, LGBTQ+ people, and other historically oppressed groups. Choose a story below to learn more about health equity experiences.
Tomeka James: A Mother’s Story of Loss, Survival, and Advocacy for Maternal Care

In 2017, Tomeka James Isaac was pregnant with her first and only son, Jace. At 40 years old, she was told early on that she would be at high risk for pre-eclampsia, yet despite this ominous warning, Tomeka’s pregnancy was progressing smoothly. Until, at her 35-week appointment, complications began.

Read Tomeka’s story
Kea Dupree: Honoring the Whole Person: Kea’s Birth Experience

Kea had a plan. Pregnant with her first child, she knew she wanted a natural birth, and she wanted her birth experience to be an experience that was unique to her. However, she felt dismissed by doctors when she made requests, and ignored at appointments. Kea switched to a birth center, and everything changed for the better.

Read Kea’s story
Tamara Hamilton: Challenges of COVID-19 Testing Criteria

Tamara's 18 month old grandson fell ill with a slight cough and signs mirroring COVID-19, but was not tested by his pediatrician. After his oxygen levels dropped, he was taken to the ER but was still not tested for COVID-19 due to not meeting testing criteria.

Read Tamara’s story

Advancing Affordability and High Value Care

As a nation, we spend over $4 trillion each year on health care, but our health and health care are not improving. More than half of Americans are worried about affording health care and a third are forced to choose between paying the rent check or the grocery bill, and their medical bills. We deserve better, higher-quality health care. Choose a story below to learn more health care value experiences.
Abbey Diamond: When You Can't Afford Coverage, You Just Hope for the Best

Priced out of her husband's employer plan, Abbey Diamond decided to stay uninsured, telling herself, "I'll just hope for the best." Then a piece of food became lodged in her throat, leading to emergency surgery and a $17,000 hospital bill she is still paying off, all while she fears what happens to her family's care once her postpartum Medicaid coverage ends.

Read Abbey’s story
Keaton Herzer: When Saving His Life Meant Draining His Savings

Keaton Herzer describes navigating his cancer treatment as fighting a system "designed to wear me down and get me to quit." Between insurance denials for a targeted therapy and, later, a life-saving liver transplant, he and his wife drained their savings account and spent a month appealing decisions, all while he was still living scan to scan, unsure if he would survive.

Read Keaton’s story
Kelly Gunn: Fighting Cancer and a Broken Billing System

Kelly Gunn, a 46-year-old Virginia resident with employer-sponsored insurance, was diagnosed with stage 1 breast cancer in July 2024 and faced thousands in out-of-pocket costs. She later learned her bill could be slashed by 50% or more once it reached collections, leading her to advocate for transparent, consistent pricing from the first bill rather than after financial hardship sets in.

Read Kelly’s story
More Advancing Affordability and High Value Care Stories