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Valuable Voices,
     Powerful Stories

Valuable Voices,
     Powerful Stories

Improving Consumer Protection, Access, and the Overall Experience

At Families USA, we share a conviction that the people — a patient, consumer, or advocate — should be at the forefront of our mission to achieve improved health and health care for all. Our goal is to bring storytellers like you into the conversation, so policymakers better understand who we are advocating for, and why these changes are so important. You are the voice, the face, and the push behind the policy, and your story matters.

Securing and Expanding Comprehensive Coverage

People in every state deserve access to affordable, equitable, and comprehensive health coverage that meets their needs. But, too many people in America are falling through the cracks in our system, leaving them paying too much for too little care, or not able to afford any insurance at all. Choose a story below to learn more about coverage experiences.
Emmy Duddles: How Medicaid Turned Years of Searching Into Accessible Care

Emmy Duddles, a 30-year-old freelance editor in Ohio, has had a migraine every day since 2016 and spent years facing denied treatments, surprise bills, and unaffordable follow-up visits. Since enrolling in Medicaid, she has been able to see her doctor regularly, uncover new health issues, and get the treatments she needs without worrying about the cost.

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Tanisha Corporal: Doing Everything Right and Still Getting Denied Coverage

After more than 20 years helping Georgians access benefits, social worker Tanisha Corporal spent eight months fighting denials and lost documents just to enroll in Pathways to Coverage, Georgia's Medicaid program. Even now that she's approved, she spends hours each month verifying her volunteer work and lives with the constant fear that her coverage will be cut off again.

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Lacey Donle: When Following Doctor's Orders Means Paying Out of Pocket

After her younger brother died of a sudden heart attack at 39, Lacey Donle followed her doctors' advice and got a full cardiac workup, only to face insurance denials, hidden charges, and a $3,000 bill on her high-deductible plan. When enhanced tax credits expired and her premiums nearly doubled, the Maine preschool teacher planned to go uninsured in 2026.

Read Lacey’s story
More Securing and Expanding Comprehensive Coverage Stories

Supporting Health and Economic Security and Justice

Everyone in America should have the opportunity to live their healthiest life no matter who we are, where we are from, or where we live. Our current health care system does not make improved health for all its primary focus, particularly for Black and brown communities, immigrants, LGBTQ+ people, and other historically oppressed groups. Choose a story below to learn more about health equity experiences.
Tomeka James: A Mother’s Story of Loss, Survival, and Advocacy for Maternal Care

In 2017, Tomeka James Isaac was pregnant with her first and only son, Jace. At 40 years old, she was told early on that she would be at high risk for pre-eclampsia, yet despite this ominous warning, Tomeka’s pregnancy was progressing smoothly. Until, at her 35-week appointment, complications began.

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Kea Dupree: Honoring the Whole Person: Kea’s Birth Experience

Kea had a plan. Pregnant with her first child, she knew she wanted a natural birth, and she wanted her birth experience to be an experience that was unique to her. However, she felt dismissed by doctors when she made requests, and ignored at appointments. Kea switched to a birth center, and everything changed for the better.

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Tamara Hamilton: Challenges of COVID-19 Testing Criteria

Tamara's 18 month old grandson fell ill with a slight cough and signs mirroring COVID-19, but was not tested by his pediatrician. After his oxygen levels dropped, he was taken to the ER but was still not tested for COVID-19 due to not meeting testing criteria.

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Advancing Affordability and High Value Care

As a nation, we spend over $4 trillion each year on health care, but our health and health care are not improving. More than half of Americans are worried about affording health care and a third are forced to choose between paying the rent check or the grocery bill, and their medical bills. We deserve better, higher-quality health care. Choose a story below to learn more health care value experiences.
Theresa V: A Hereditary Disease, an Insurance Gap, and a Fight to Afford Treatment

Theresa manages a rare, life-threatening genetic disease that killed her father, but losing her job-based insurance turned her care into a monthly guessing game of statements, reimbursements, and gaps in charitable funding. She's now unsure how to cover her daughter's health needs and fears what happens once assistance funds run dry for good.

Read Theresa’s story
Hannah Novy: Insured, and Still Facing Tens of Thousands in Debt

After developing severe preeclampsia at 30 weeks, Hannah Novy spent 16 days hospitalized while her daughter spent 41 in the NICU — and because their coverage renewed mid-stay, the family now faces bills from two separate plan years. Despite having insurance, Hannah estimates they could owe at least $30,000, with no clear way to pay it.

Read Hannah’s story
Michael Best: 35 Years Helping Others, Now Fighting to Afford His Own Recovery

Michael Best spent 35 years helping others through housing insecurity and crisis, but nothing prepared him for the cost of his own stroke recovery. Between speech therapy he can't afford and loans he'll be paying off for years, he says no one should go into lifelong debt for basic care.

Read Michael’s story
More Advancing Affordability and High Value Care Stories